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ADD & ADHD
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CH.A.D.D)
8181 Professional Place, Suite 201
Landover, MD 20785
(301) 306-7070 (800) 233-4050 (Voice mail to request information packet)
www.chadd.org
National Attention Deficit Disorder Association (ADDA)
P.O. Box 1303
Northbrook, IL 60065-1303
www.add.org
Alpha 1
Dick Bueker
Kansas City, Missouri
800-711-5978
rabbjp@mindspring.com
Arthrogryposis
Adults With AMC (Arthrogryposis)
Yahoo List Serve
Autism Missouri
A-List
A_list-subscribe@yahoogroups.com
mo-feat@E-mail.com
Autism/Special Needs Support Group
Sylvia Stone
816-224-5390
sylstone@sbcglobal.netwww.cmapjudevine.org
Central Missouri Moms of children with Autism
Lora Hinkel:
lorahinkel@hotmail.com
Missouri Families for Effective Autism Treatment/MO-FEAT
314- 275-8880
www.mo-feat.org
Camden County Autism Support Group
Sally Everhardt
ccsupportnavigator@hotmail.com
Central Missouri Autism Project (Judevine Center)
573-874-3777
Newly Diagnosed/ New to K.C. Parent Lunch Series
816-460-2502 816-507-0169
www.autismalliancekc.org
Asperger’s Family Support Group of the Northland
816-792-0639
nancyallgood@sbcglobal.net
Northland Autism Asperger Support Group
816-792-2823
rrussell@sonnenschein.com
OSCAR (OSage County Autism Resources)
Debbie Muenks
573-897-4103
debbymuenks@yahoo.com Parents of Asperger Children Together (PACT)
573-449-6068
Lee’s Summit Autism Support Group
http://lsautism.org
RDI-KC
ccjgrider@comcast.net
St. Charles County Autism Support Group
http://sccasg.org/
Warrensburg Autism Support Group
660-429-6409
http://warrensburg.lsautism.org/
Autism Kansas
Allies for Autism Spectrum Disorders
913-682-3516
dknolton@kc.rr.com
913-775-2638
sandyk@kc.rr.com
Brain Injury
Blue Springs
Joan Zoller
816-229-7795
Asperger Parent Support Group of Topeka
785-608-2438
aarc_parents@sbcglobal.net
Autism Asperger Parent Facilitated Group
kc_asd@sbcglobal.net
Autism Society of the Heartland
913-706-0042
www.autismsocietyoftheheartland.org
Autism Society of Kansas
316- 943-1191
http://www.ask.hostrack.net/
Family Advocacy Center for Education and Support
(F.A.C.E.S.)
913-768-6717
mdhorn@123mail.net
Parents of Asperger Children Together (PACT)
573-449-6068
Lawrence Autism Society
Maria Brockman
785-842-4737
lawrenceautismsociety@yahoo.com
RDI-KC
ccjgrider@comcast.net
Wyandotte County Autism Society
913-909-3882
wcas2004@sbcglobal.net
Brain Injury Assn. of KS & Greater Kansas City
1100 Pennsylvania, Suite 4061
Kansas City, MO 64105-1336
(816) 842-8607
www.brain-injury-ks-gkc.org
Cerebral Palsy
UCP of Greater Kansas City
1044 Main Street, Suite 600
Kansas City, MO 64105
(816) 531-4454
UCP of Northwest Missouri
3303 Frederick Avenue
St. Joseph, MO 64506
(816) 364-3836
United Cerebral Palsy of KS
P.O. Box 8217
Wichita, KS 67208-0217
(316) 688-1888
Chromosome Conditions
Homeschooling Kids Who Can
Kim Bowlin
akbowlin88@yahoo.com
Hydrocephalus
Hydrocephalus Support Group, Inc.
P.O. Box 4236
Chesterfield, MO 63006
636-532-8228
Learning Disabilities
Learning Disabilities Association of Kansas
P.O. Box 4424
Topeka, KS66604
(785) 272-0033
Muscular Dystrophy
MDA-Missouri Valley Chapter
3800 Elizabeth
Independence, MO 64057
816-795-2430
MDA-Kansas
15301 W. 87th Parkway
Lenexa, KS 66219
913-631-1717
Noonan Syndrome
Support Group by e-mail*listserv@home.ease.lsoft.com
Please add in the message line *subscribe Noonan Syndrome*
Nutrition
Angie Knight
www.marianhopecenter.org
Osteogenesis Imperfecta
Susan Wright
636-931-5607
Kanasas
Susie Gibson
816-650-6344
Phenylketunuria
Kansas PKU Network
Prader-Willi Syndrome
PWSA of Western Missouri and Kansas
Attn: Teri and Barry Douglas
14 NE Bayview
Lee*s Summit, MO 64064
816-350-1375
Rett Syndrome
Pete and Fern Hummert
636-458-0253
phgrhset@aol.com
Shaken Baby Syndrome
The Shaken Baby Alliance
1-877-6-END-SBS
Sibling Support Groups
SHINE
Siblings Helping Initiate Knowledge & Empowerment!
Gloria Dryer
glo@kc.rr.com
816-838-1009
http://groups.yahoo.com/group/shine97/
Sickle Cell Disease
SCDAA of Western MO
2301 Holmes Kansas City, MO 64108
816-556-3012
Spina Bifida
SBA of Kansas
Tim and Tammy Wolke
P.O. Box 633 Wichita, KS 67201
316-516-7725
General Support Groups
EFECT (Encouraging Families with Exceptional Children Together, Inc.)
816-537-5951
ww.efect.org
Family Advocacy Center for Education and Support (F.A.C.E.S.)
913-768-6717
mdhorn@123mail.net
The Family Conservancy
913-342-1110
www.thefamilyconservancy.org
Sharing Our Strengths (SOS)
816-235-5684
www.sharingourstrengths.com
S.L.I.D.E. Kids (Play Group)
816-699-0272
www.slidekids.org
Special Kids Special Parents Support Group
ggrayum@waddell.com
danahughes@kc.rr.com
Special Needs Support Group
816-224-5390
syltstone@sbcglobal.net
Teen Club
816-229-2034
dianesingsforjoy@comcast.net
Vision with Hope/Visiones con Esperanza
816-241-3780
mebenavites@mattierhodes.org
Wyandotte County Parent Support Group
Sam Stillwell
913-371-1028
Unique
http://www.rarechromo.org/
Cognitive disability
The Arc of Kansas
3601 S.W. 29th, Suite 105
Topeka, KS 66614
(785) 271-8783
TheArc@cjnetworks.com
Clay-Platte ARC
7400 N. Oak Trafficway
Kansas City, MO 64118
816-436-3009
ARCare, Inc
9557 W. 87th Street
Overland Park, KS 66212
913-648-0233
Congenital Heart Defects
Congenital Heart Defects
PO Box 46744
Kansas City, MO 64188-6744
913-535-4970
Cystic Fibrosis
Heart of America Chapter
Gregory Alejos
Mission, KS
913-384-8997
hoa@cff.org
Down syndrome
The Down Syndrome Guild of Greater Kansas City
10200 W 75th St # 281
Shawnee Mission, KS 66204
(913) 384-4848
www.kcdsg.org
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